Patient reported measures

Why this indicator is important

Patient-reported measures (PRMs) refer to tools, such as surveys, questionnaires or scales, used to collect information directly from patients.

Gathering patient reported measures involves asking people with cancer about their experiences and outcomes, providing clinicians with real time information about patients’ experiences, helping to identify urgent clinical and supportive care needs and drive immediate and long-term local and system improvements.

The Institute has developed and rolled out an integrated statewide PRMs solution for people with cancer. This electronic system provides cancer services with the capability to electronically collect patients' reported health outcomes and experiences.  It also makes the information available to the relevant healthcare teams through the cancer service’s electronic medical record (MOSAIQ or ARIA).

Patients completing the survey also have the option to receive self-care information that directly relates to their survey responses.

Cumulative number of patient-reported outcome measures (PROMs) completed over time, September 2019 – March 2024

About this indicator

This indicator shows the usage of PRMs across NSW. As of December 2023:*

  • Twenty-seven services across 12 LHDs in NSW are using the system.
  • 9606 patients have completed a survey.
  • 19,639 surveys have been completed. This includes 6744 surveys completed from January – December 2023

*Data reported is most up to date available at end of December 2023. Graphs and tables reflect last reporting period (to March 2024)

Notes

1. Data source: Patient Reported Measures System, extracted 23rd April 2024.

 2. PROMs captured include Edmonton Symptom Assesment System, Distress Thermometer and What Matters 2 Adults PROMs